Raghda is a three-year old lovely child
who lived in a big and happy family. She was the youngest, yet the most energetic
and lively. Every day, she used to wake up early and walk towards her mother
and lie down next to her. With her tiny fingers, she starts to play with her
mother’s face. This innocent play wakes up the mother. They had an old but
functioning alarm clock, but Raghda used to wake up before the alarm goes off. The
mother gets up from bed, walks her little child to the
kitchen, and starts preparing breakfast while Raghda is busy eating a piece of
bread. From the kitchen, breakfast’s incense slinks into the bedrooms declaring
breakfast time which wakes up the rest of the family. People start to get up,
wash their faces, brush their teeth, and head to the dining room. At that time,
Raghda has already had her breakfast; so she starts to look for fun. One of her
most favorable fun is to embrace her father’s head trying to jump on his
shoulders. He has no choice but to go with the flow; so he starts to tickle her.
At this moment, her laughter fills the place out declaring a new happy day.
One day, Raghda’s eldest brother, Ahmad,
woke up sweaty and feeling hot. “What a hot sun!”, he said, and plodded towards
the window and closed the curtains. Just before he lied in bed, he glanced at the
wall clock. “Oh my God, It’s almost 9! Why no one woke me up?”, Ahmad
wondering. He got up again and sat on the bed’s edge yawning and rubbing his
eyes. While washing his face, he realized that something unusual had happened; breakfast
time was not declared on that day. He walked to the dining room but nobody was
there. Then he walked to the kitchen and found that no breakfast had been
prepared. He stood confused for a while in the kitchen and then walked to the
parent’s bedroom. He was surprised when he saw the bedroom’s door open and no
one was inside. Worried and baffled, he rushed into his siblings’ bedrooms. He felt
much reassured when he found them sleeping. On the way back to the kitchen, he
realized that he didn’t see Raghda in her bed. He went to check again, and yes,
Raghda was not there. Suddenly, the house door opened slowly and the father
walked in alone with tearful eyes. Ahmad became horrified and asked his father
in a panicky tone “what is going on?”, but the father didn’t reply. After
prolonged prevailing silence, the father answered Ahmad’s question with a
grievous voice.
All possibilities and options were
discussed with the physician, the only choice was chemotherapy. Even though,
prognosis was very poor. The physician told the parents that leukemia in late
stages is hard or even impossible to cure, but they needed to decide whether to
try chemotherapy treatment or not. That probably was the toughest decision they
ever needed to make; especially with the poor prognosis of her disease. They felt
that she will suffer even more from chemotherapy while at the same time she had
no chance. Days later, they decided not to try chemotherapy and let her leave
this world peacefully. Hearts were broken, the world was getting darker, and
time was running too fast. Ever since that day, morning declaration becomes
solely the job of that same old alarm clock.
I wrote this piece to emphasis the negative impacts of late diagnosis of cancer; which calls for investigating the factors contributing to late detection and diagnosis. In addition to this, I wanted to shed some light on how cancer disturbs family roles.
ReplyDeleteP.S note:
I would like to add the following points to our discussion on this post:
1.Consider yourself a family friend who has no specialized knowledge in cancer or chemotherapy, would you support or repudiate the parents’ decision of not trying chemotherapy treatment?
2.Feel free to comment on, suggest, and/or correct any grammatical or linguistic error.
Thank God I didn't read it last night, it's very sad.The descriptive intro. is a piece of art; and by the end of the piece it is heartbreaking!
ReplyDeleteI think they did the right thing.I mean you watch people on chemotherapy die everyday and you can do nothing about!
I don't know MOhammed, that must have been one tough decision!May I ask if this is a true story?
ReplyDeleteThanks Salwa.
ReplyDeleteIt's sad actually, and I think it's the same across all cancer stories. This disease is really bad. People grieve from cancer loss probably more than other diseases or events.
And yes, this is a true story. The second paragraph is not precisely true but the general theme is. I wrote it that way to depict how this disease messes families through visualizing those two days.
Mohammed, So sad story.
ReplyDeleteCouple of years ago my family went through a tragedy that turn our life upside down. My aunt,mother of four, suffered from aggressive lung cancer. Unfortunately, the diagnosis was at late stages which left very limited therapeutic options. It was so overwhelming and painful to all my family to feel desperate and can not help her. The chemotherapy was ineffective to her case and she had only its adverse effects. My uncle took her to many advanced hospitals looking for cure that hopefully end her pain but without hope. After six months of extensive chemotherapy combined with radiation therapy and pain killers she died leaving behind broken family and shattered children. I never forget her look to me at the hospital a day before her death, she was trying to say something but her voice was imprisoned in her weak lung. It was a big grief to whole my family.
I brought this personal experience to emphasize that chemotherapy not necessary effective for all cancer cases and the benefits should be weighed against the costs in order to decide if the chemotherapy will be a good option for the patient. If it was up to me, I would rather let her spend her last days between family and her kids, and keep her away from depression of the hospitalization.
ReplyDeleteAlthough there are some small linguistic errors here and there, I liked the way you have captured the essence of the story and managed to give it a touching end. The questions that you have brought forward are extremely difficult to think about and answer for everyone and only people who have been through parallel situations in life might be able to get close to answering them, so I will refrain from it. Overall, you have done a good job combining science and ethics and presenting it in the blog in a strategic & methodical way by giving analogies and detailed descriptions of characters and incidences.
ReplyDeleteHashim,
ReplyDeleteI'm sorry about what happened to your aunt. I understand how this was devastating.
I wish some day the science finds a way to early detect and properly treat cancer. And I hope that to be accessible to all patients.
Swagata,
ReplyDeleteThank you so much for your feedback, I do appreciate it.
Yes, that question is really hard to answer. It becomes harder when the diseased is a child. Although the parents or the leagal guardians are the ones who leagally make such decisions, but is it really ethical? I mean, what if a decision that had been made for a child was not the decision that this child could make for himself/herself as an adult? To make it more concrete, what if a child survived but sustains life-long consequences that are negatively impacting his/her quality of life? What if the case is the opposite?
I don't know the answers and I don't think I will, but these were some of "what if" questions that always pop up into my mind.
It is very painful to see a little child suffering from lethal disease. what if he/she is your child! I could not even imagine. I worked at a tertiary care hospital, where a new cancer cases were diagnosed daily. Good that I saw the patient samples only. I could not tell you who harsh is to see an EDTA sample with 1 cm buffy coat(WBC), and find out that it is from a 3 years old boy for one of your relatives. He was as old as my son, and that was enough for me to live the experience.
ReplyDeleteTo answer your question: As it was a poor prognoses in the case you mention, I supports the parents decision. Chemotherapy will kill her twice.
Grammatical and linguistic error!!! I'm not a good candidate to do so.
Thanks for sharing this touching story Mohammad. Cancer and disease like it, which can carry a poor prognosis are emotionally challenging for all parties involved. I believe it is very importnat to respect a families autonomy and their choice of treatment. I also feel it is very important for a physician to give a full disclosure of all possible therapeutic options and their efficacies. Miracles have happened but they are rare. I think the most important thing to do is reassure the family that you are going to help them get through this challenge, no matter what their choice is.
ReplyDelete